Conference Keynote Speakers
When our parents die we are orphans and when our partner dies we are widows, or widowers. Yet when our child dies what are we? There is no singular word that bestows upon us a title that represents what we have become. Or that adequately describes what has been taken away, lost or stolen. Perhaps it is because as adults our parents represent our “then”, our partners our “now” but our children represent our future.
Our children are an infinite number of possibilities to dream about, and hope for, and when our child dies those hopes and dreams die with them. After the loss of one’s hopes and dreams where do we find the courage to rebuild our shattered selves? And how do we know we are rebuilding in the right way?
In our highly medicalised pakeha influenced society grief can be judged as being “disordered” if it is viewed as going on too long, or doesn’t follow an accepted path. We might seem too unchanged, or have changed too much. How do we navigate this as bereaved parents or as someone supporting us? By placing child loss in a social context I will explore the space left empty by the death of our children and discuss the rebuilding of connections to that which has been lost.
For more information on Jane please visit her website
Janel Atlas is a PhD candidate of English at the University of Delaware. Her research centres on emotion and writing studies, particularly the importance of writing about loss, grief, and trauma. She is especially interested in ways in which a writing practice helps individuals process and grow through difficult experiences.
Before starting graduate studies at UD, she worked as a freelance writer; including an edited collection called They Were Still Born: Personal Stories about Stillbirth (Rowman & Littlefield, 2010).
In addition to being a student and teacher, Janel is also a mother, partner, friend, runner, writer, adventurer, usefully pushy person, and lover of Brussels sprouts.
Award winning journalist Miriama Kamo is the host and correspondent for TVNZ’s flagship current affairs programme Sunday, and for Maori current affairs programme Marae.
Miriama is also a writer, she released her first children’s book The Stolen Stars of Matariki in 2018.
As an endometriosis sufferer Miriama is passionate about women’s health and issues related to fertility. A mother of two, she is the ambassador for Endometriosis NZ.
Formerly a Hawke’s Bay doctor, David was appointed Professor of Maori and Indigenous Research at Eastern Institute of Technology (EIT) in early 2017. He was made a Member of the New Zealand Order of Merit for services to Maori and health in 2018. From Porangahau and Ngati Kere and Ngati Manuhiri descent,
David has spent his working life promoting Maori health. Celebrated for the work he has undertaken to prevent SUDI deaths, he worked with weavers and Maori midwives in developing the wahakura woven flax bassinet and “its little sister”, the plastic Pepi-Pod.
The subsequent Safe Sleep programme has been credited with saving the lives of many babies. The Ministry of Health announced in 2017 that the infant safe sleep programme would run the wahakura project nationwide.
David continues to advance his research interests at EIT, where he also teaches a postgraduate programme in Maori health.
Concurrent Session Topics & Speakers
CONCURRENT & PLENARY SESSIONS:
CONCURRENT & PLENARY SESSIONS:
- Developments in Baby and Child Loss Support in Aotearoa – Vicki Culling and Becky Cassam
- A Maori Mum’s Approach to Grief and Loss – Pania Mitchell
- Perinatal Pathological Investigations for Bereaved Families – Kay Jones
- New Directions in Foetal Movement Research – Billie Bradford
- A Long and Precious Farewell: a memoir and website to support perinatal palliative care in New Zealand – Emma Gilkison
- When Mother and Baby Die: A Family’s Story – Vicki Culling and Suzanne Edwards
- Acceptance and Commitment Therapy – Liora Noy
- Integrated Palliative Care: There is always Hope – Emily Davidson
- Breast Milk Bank – Hazel McGregor
- Meditation and Mindfulness – Emma Gilkison
- Foundations and Whakapapa- A narrative therapy approach to rebuilding lives – Jane Weekes
- Secondary Trauma: The Impact Baby Loss has on the Professional Involved – Chris Stanbridge
- Patchwork Taonga – Emily Davidson
- Surfing Waves of Grief and Trauma with Body-Mind Methods – Kathy Hughes
- What is the PMMRC? Stillbirth rates and comparisons – Dr. John Tait
About our theme.... Rebuilding your Life
Rebuilding your Life is about finding the new you, learning about the journey through grief and discovering the resilience to go on.
Being a city devastated by a major earthquake and having to rebuild we found the theme quite fitting for this area. As the city rebuilds, so do we rebuild our lives after our own 'earthquake'. How we do this, where we find support, and the journey of a city and ourselves were quite symbolic, especially in relation to grief. So we felt it quite fitting to follow this theme throughout our 2019 Conference.